Caregiving: How to Get Others to Help!
Posted September 20, 2005 10:00 AM
Author Elder Rage www.ElderRage.com
Host Coping With Caregiving Radio Show www.wsRadio.com/CopingWithCaregiving
Listen to an overview of one of Jacqueline’s seminars:
http://boss.streamos.com/wmedia/wsradio/elder/121705/segment4.asx
WELCOME BACK ALL MY CAREGIVERS—Tell us your story!
I hear complaints like this all the time: "My brother/sister won't help with the care of our elderly father and I am so angry about it." I know--I lived that one myself. My brother lived a half-hour away from Mom & Dad, I lived over 400 miles, yet I was the one who gave up my life to care for them. If I had it to do over, here's what I'd do.
First, I'd realize that my brother had a very different upbringing than I did, not getting the love that I'd gotten from a jealous father. I'd also realize that you can't make anyone do anything they don't want to do, and that being bitter wouldn't help at all. But had I asked him to help with some tasks that I needed done (unrelated directly to the caregiving), I am sure he would have helped ME.
Things like:
Have the car serviced, tires rotated, filled with gas
Get the broken lamp fixed
Have clothes altered
Get a new battery for my watch
Gardening work
Take stuff to the dumps
Clean out the garage
Pick up groceries
Take me to lunch
Make a list of tasks you need to get done, in addition to the caregiving chores, and the next time a family member or anyone says, "I am so sorry about what you are going through, is there anything I can do?"--you can say, "Yes, here's a list--pick one!
Jacqueline Marcell
Author, Elder Rage www.ElderRage.com
Host, Coping With Caregiving Radio Show www.wsRadio.com/CopingWithCaregiving
Tell us your story!
Thank you Brian! Actually I am finally past all the breast cancer treatments and am in the on-going follow-up stage. So far so good! And thanks for sharing this great idea. How I wish I'd had an advocate to help me ask people for their help.
It's tough to ask others to help, or even respond to an offer. It's tougher when there's "family stuff" in the mix. I applaud Jacqueline's identification of less-demanding tasks that can be given to others, but don't think caregivers should have to wait till they ask. We've developed a plan that recruits a friend to act as an advocate to get a caregiver help with all the little (and some big) tasks that can take time away from your most important activity. A friend (or family member) in this position can feel good when they ask: "can you help out here?" and can reduce/eliminate the family stuff. It becomes more of a "We want to get Jacqueline's car serviced, can you pick up the tab?" or "Can you call x restaurant and have them deliver dinner next Tuesday?" which can be responded to a lot less emotionally. It worked in my family while I went through cancer treatment. Our company helps people organize these programs, but the first step is to take the responsibility for asking off the caregiver's plate and give it to someone who would welcome a chance to spend an hour or two a week getting help for their caregiving friend.
Jacqueline, best wishes for a rapid recovery.
Brian Gallick
Hi Jacqueline,
I'm happy to hear your feeling better. We, (most all) think we are different, but no,IMHO anyway, we are pretty much the same, I am going through the exact same thing with my parents. Your absolutly right about, when your parents age, they tend to settle in a habit they know, they get more of a certain way they know, if they were really nice they get more nice, if they were crabby and spoke in a condescinding way, they are more so, like my Dad.
We are learning, for me anyway, I can't read enough books to understand.
Take care,
Jack H. Gilbert
Jacqueline,
So glad to hear you are on the mend from breast cancer. I was not aware of that.
I am still referring folks to your book, Elder Rage. It was a godsend to me four years ago when I was in the midst of caring for my mom here in my home. My heart goes out to all those caregivers out there. My sister, 57, has been diagnosed with frontal lobe disorder-a form of dementia. The saddest thing. So here we go again....so far her husband and family have been the primary but something tells me I may be pressed into service again one day. I pray God will give me the abilities I need to do as good a job for her as I know she would for me if the situation were reversed.
God bless you and your work. I think of you often. Should you find yourself in the Phila. area anytime, please call-you would be welcome to stay with us.
Wow!! OK, forget everything I said--if I had four sisters and I was in your situation, I'd absolutely DEMAND that they belly up to the bar and help take care of their mother! YOU HAVE DONE YOUR PART--10 years!!! Are you kidding me--of course you are bitter!! They all need to take a turn at caregiving to give you a MUCH-NEEDED break, and I am sure you will be happy to show them how. I am sure they will all take care of YOU when the stress of caregiving gives you a chronic disease. HA! AND, if your mother has any assets left when she passes, they shouldn't get a cent. AND, you can tell your thankless sisters I said so! Also, tell your husband he is a gem. Good grief, that is terrible. I have a feeling that you haven't been forceful enough with them about this and they have just let it slide and slide aaaand oh my gosh, ooops, where has ten years gone already! YOU SPEAK UP--LOUDLY--I do not want to hear that you have cancer from ten years of caregiving stress! I know about this--I am battling breast cancer!
You're absolutely right about letting go of the bitterness, but it is a daily struggle to do so. I would come closer to accepting my lack of sibling support in the care of my 82-year-old mother if siblings were brothers, who sometimes have difficulty in nurturing or caregiving roles, but I am the youngest of five sisters. In times of crisis, I know that I could count on them in a heartbeat, but it is the day-to-day frustration of dealing with an aging parent and her constant presence in my home that wear on me more than the crises. My husband and I had one year of married life alone before my mother moved in and she's been here 10 years.
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