The federal National Institutes of Health (NIH) has launched a centralized, secure “enclave” to store and study vast amounts of medical record data from people diagnosed with COVID-19 across the country. It is part of an effort, called the National COVID Cohort Collaborative (N3C), to help scientists analyze these data to understand the disease and… Continue reading A New COVID-19 Research Tool
Tag: data
How You Can Help Alzheimer’s Research
From the experts at the National Institute on Aging, a list of studies that people can consider joining as part of an effort to learn more about Alzheimer’s and other kinds of dementia: Joining a registry or matching service can help advance research on Alzheimer’s disease and dementia. You don’t have to have Alzheimer’s to… Continue reading How You Can Help Alzheimer’s Research
Health Data Collection Is Often Substandard
Most clinical registries that collect statistics on patient outcomes are substandard and lacking in features that could make them useful for patients, doctors and policy makers, according to a study. The investigation, by researchers from the Johns Hopkins University School of Medicine, was published in the Journal of Healthcare Quality. The study revealed poor data… Continue reading Health Data Collection Is Often Substandard