The Genetic Information Nondiscrimination Act of 2008, or GINA, expanded individuals’ access to genetic information by forcing changes to the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule. These amendments, finalized in 2013 and 2014, gave Americans a civil right to obtain copies of their own genetic test results stored at HIPAA-regulated laboratories. In… Continue reading Accessing Your Own Genomic Data Is a Civil Right